Development and preliminary testing of the psychosocial adjustment to hereditary diseases scale
Development and preliminary testing of the psychosocial adjustment to hereditary diseases scale
The presence of Lynch syndrome (LS) can bring a lifetime of uncertainty to an entire family as members adjust to living with a high lifetime cancer risk. The research base on how individuals and families adjust to genetic-linked diseases following predictive genetic testing has increased our understanding of short-term impacts but gaps continue to exist in knowledge of important factors that facilitate or impede long-term adjustment.