A thesis submitted to The University of Birmingham for the degree of Clinical Psychology Doctorate

CHILDREN, YOUNG PEOPLE AND COELIAC DISEASE VOLUME I:RESEARCH COMPONENT BY ELENI THEODOSI A thesis submitted to The University of Birmingham for the degree of Clinical Psychology Doctorate School of Psychology College of Life and Environmental Sciences University of Birmingham June 2009 University of Birmingham Research Archive e-theses repository This unpublished thesis/dissertation is copyright of the author and/or third parties. The intellectual property rights of the author or third parties in respect of this work are as defined by The Copyright Designs and Patents Act 1988 or as modified by any successor legislation. Any use made of information contained in this thesis/dissertation must be in accordance with that legislation and must be properly acknowledged. Further distribution or reproduction in any format is prohibited without the permission of the copyright holder. Children, young people and Coeliac Disease Overview Volume I Volume I comprises a review of the literature about children and young people with Coeliac Disease, a common autoimmune disease characterised by an immune response to the protein gluten, found in wheat, barley and rye. It also comprises a qualitative research paper detailing interviews with young people that aimed to tap their lived experiences of the disease. The final part of Volume I comprise a public domain briefing paper summarising both the literature review and research paper. The literature review considers the evidence for problems with adherence to treatment (a lifelong diet free from gluten) for young people with Coeliac Disease as well as psychological effects of having the disease in childhood. Studies of parental views were also included. The results suggested that there is some element of psychological distress associated with having CD in childhood, and that adherence to the treatment appears to be influenced by age and gender. Studies of parents’ views about their child’s Coeliac Disease suggested that parents’ belief in their ability to manage the disease is important to how young children adhere to treatment. The research project describes how 5 children and young people were recruited and interviewed about their experiences of living with Coeliac Disease. The resulting data were analysed using Interpretative Phenomenological Analysis and two themes were subsequently identified. These themes related to identity as a young person with Coeliac Disease and to perceptions about food. Children, young people and Coeliac Disease Volume II Volume II comprises five Clinical Practice Reports: Clinical Practice Report 1 describes the “challenging behaviour” of a 42 year old man with learning disabilities. Subsequently, formulations of this behaviour from a behavioural and a systemic perspective are presented. Clinical Practice Report 2 is a service evaluation conducted in the Heart of Birmingham that aimed to measure outcomes for adults with a learning disability, as well as considering outcomes separately for different ethnic groups. Clinical Practice Report 3 is a case study of a 16 year old girl with anger difficulties using CBT within the Solihull Approach model. Clinical Practice Report 4 describes cognitive-behavioural intervention with a 39-year old man suffering with anxiety as a result of residual psychotic symptoms. Clinical Practice Report 5 was an oral presentation of a piece of clinical work completed with staff at a day hospital for older adults, conducted in order to help the staff adjust in their move to a new location. Children, young people and Coeliac Disease Acknowledgements I would like to thank all the children and young people, and their parents, who took part in my research. Their time and interest in the project was fantastic, and I wouldn’t have been able to complete this thesis without them. I would also like to thank the two local Coeliac support groups for their enthusiasm and help recruiting the children, young people, and their parents to the study. My thanks also to Dr Goldstein, paediatrician at Birmingham Children’s Hospital, and Ros Blackmore, dietician, for their help in the early stages of the project. I also appreciate the time and support of both research supervisors, Dr Ruth Howard and Dr Gary Law, for putting up with my questions and tantrums, and working at weekends to go through drafts! Finally, I ought to mention my fiancé, and to thank him for supporting me throughout the whole course, and especially during these last few months – I promise I won’t do another degree! ... - tailieumienphi.vn